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Johnny Asia
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 Posted: Thu Sep 11, 2003 7:29 am Post subject: Re: Jonathan Edlow>s book, Bull>s-Eye: Unraveling the Medica |
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[quote]
Guess I>ll save my money on this one then. I
Thanks for informing us.
Janis
[/quote]
I heard Erdlow on NPR, he gives the history of Lyme disease,
including the Yale info, he wasn>t on the Yale team. On NPR
he was talking about how the Yale team overlooked data that
was available at the time.
I would buy the book.
Johnny
+
"The power of accurate observation is called cynicism
by those who have not got it." - G. B. Shaw
The First Church of Common Sense
Want to know what>s REALLY going on in Iraq?
http://www.angelfire.com/co/COMMONSENSE/wakeup.html
The Rise and Fall of the Holy Roller Empire
The God-Awful Truth about Christian Zionism
http://www.angelfire.com/co/COMMONSENSE/armageddon.html |
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RMAgricola
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| Posted: Sat Sep 13, 2003 8:31 am Post subject: Re: Jonathan Edlow>s book, Bull>s-Eye: Unraveling the Medica |
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I would not spend any money on Edlow>s book. If you are interested in reading
it go to your local library.
Martha A. |
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JWissmille
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| Posted: Sat Sep 13, 2003 6:14 pm Post subject: Re: Meat contains Lyme Disease bacteria |
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compiled from archives:
Unfortunately there are reports of excretion of Borrelia burgdorferi in
MILK in women, cows, and mice (especially colostrum) if the borrelia infection
is aquired during period of lactation; Sousan Altaie also provides evidence of
transmission of borreliosis by milk to mice-pups.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_
uids=95376935&dopt=Abstract
95376935 Diagn Microbiol Infect Dis 1995 Mar; 21(3): 121-8
Detection of Borrelia burgdorferi DNA by polymerase chain reaction in the urine
and breast milk of patients with Lyme borreliosis. Schmidt BL, Aberer E,
Stockenhuber C, Klade H, Breier F, Luger A
(excerpts from abstract: PCR-test for Bb ...
In addition to urine, breast milk from two lactating women with erythema
migrans was tested and also found reactive.)
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_
uids=89048796&dopt=Abstract
89048796 Ann N Y Acad Sci 1988; 539: 235-43
Borrelia burgdorferi infection in Wisconsin horses and cows.
Burgess EC
(excerpt from abstract:
Of samples cultured 7/156 cow bloods, 2/35 horse bloods, 1/14 cow synovial
fluids, 0/4 synovial fluids, 1/3 cow colostrums, 0/44 cow milk, and 2/10 cow
urine samples were B. burgdorferi culture positive.)
Journal of Spirochetal and Tick-Borne Diseases 1998; 5(4):54-62
Evidence for in utero Transmission of Borrelia burgdorferi from Naturally
Infected Cows
Leibstein MM, Khan MI, Bushmich SL
http://www.medscape.com/SLACK/JSTD/1998/v05.n04/std0504.02.leib/pnt-std050
4.02.leib.html
(excerpts from the abstract:
Five of 15 adult cows were spirochetemic at parturition; 4 of the calves from
these cows were also spirochetemic at birth (PCR). Spirochetes were cultured
from the placentas in 2 of 10 cows and from the uterine fluid in 1 of 8 cows.
Borrelia burgdorferi DNA was detected in the colostrum in 4 of 12 cows. Three
of 15 calves were stillborn; Borrelia burgdorferi DNA was detected by PCR in 3
of 3 and spirochetes cultured from 2 of 3 stillborn calves. Fetal tissues from
which Borrelia burgdorferi DNA was detected include blood, spleen, bladder,
kidney, synovial fluid and tissue, heart, cerebrum, and aqueous humor. Borrelia
burgdorferi was cultured from the spleen of one stillborn calf and the kidney
of another. Detection of Borrelia burgdorferi DNA from the tissues of stillborn
calves, as well as spirochetemia in neonatal liveborn and stillborn calves,
gives evidence for in utero transmission of Borrelia burgdorferi in naturally
infected dairy cattle.)
source: Journal of Spirochetal and Tick-borne Diseae Vol. 6, Summer, 1999
title: reprint of Borrelia: Strains, Vectors, Human and Animal Borreliosis
author: Oscar Flsenfeld
published in 1971
pg. 48
"The presently prevailing belief is that borreliae may enter the human body
through uninjured mucosae, including that of the gastrointestinal tract..."
source: Coping With Lyme Disease by Denise Lang
pg. 10
"Other Means of Transmission"
"There is much controversy over the possibility of transmission of Lyme
disease by means other than a tick bite. Since the Lyme spirochete, in later
stages, has been isolated from various body fluids, there is much discussion
regarding the passing of the Lyme infection through blood transfusion, sexual
relations, and breast milk.
"The Red Cross will not allow anyone who has had an active Lyme disease
infection during the preceding year to be a blood donor. Various research
studies have shown that the spirochete can live under blood bank conditions for
up to several months. In addition, there is a small number of documented cases
where a person apparently has been infected through a blood transfusion..
"A growing number of doctors agree that not only can Lyme disease be
transmitted through the placenta but it can also be passed to an infant through
breast milk. Again, continuing studies have isolated the spirochete from
breast milk and seem to support this position.
"One of the more controversial theories is that Lyme can also be transmitted
sexually. Although this has not been proven at this time, a number of
reputable clinicians maintain that, due to the spirochete>s presence in body
fluids, the amount of fluid ejaculated during sexual relations would be enough
to transmit the spirochete from the male to the female. Like syphilis, Lyme
disease is caused by a spirochete. No one disputes that syphilis can be
sexually transmitted, so the thinking in many circles is that the Borrelia
spirochete behaves much the same way. A number of cases of husband/wife
infection have been documented, but further studies have to be undertaken
before infection through sexual transmission is proven with any certainty."
---- When talking about sexual transmission you have to remember that it only
takes 4 spirochetes to establish syphilis infection in a rabbit. (Mandell,
Douglas and Bennett>s Principles and Practice of Infectious Diseases ---chapter
215 Treponema Pallidum (syphilis) When someone is being tested for Lyme
disease it is usually only one or a few samples. I think the amount of body
fluid involved in sexual transmission is different and usually involves more
fluid samples over a longer period. There is also the possibility of
transmission through an abraded mucous membrane.
from: Coping With Lyme Disease by Denise Lang
pg. 135
"If you are pregnant and have been bitten by a tick in an endemic area, are
displaying symptoms consistent with Lyme disease, or have been diagnosed with
Lyme in the past:
".....
"4. After the birth be vigilant in your observations regarding the health
of your baby. Even though a baby born to a Lyme mother may appear to be
healthy at the moment of birth, it is still possible that transplacental Lyme
symptoms can crop up months later. There is no need to be paranoid and
neurotic about this; just be observant and consider the possibility if chronic
illness becomes a way of life for your infant.
"5. Breast feeding is also not recommended if you have had Lyme disease
during the previous year, since Lyme spirochetes have been isolated from breast
milk...."
from: Everything You Need To Know About Lyme Disease by Karen
Vanderhoof-Forschner
pg. 14 Are Tick Bites The Only Source of Lyme Disease?
"There has been only a very limited amount of research into the ways by
which the Bb spirochete may be transmitted other than through a tick bite.
Indeed, this is such a controversial area that most researchers are reluctant
even to probe into it. My belief, however, is that what we don>t know can hurt
us, and it makes sense to explore all possible avenues, especially those
described here."
Pregnancy and Breastfeeding
"The possibility that tick-borne diseases can be transmitted to the
developing fetus during pregnancy is one of the most wrenching issues we deal
with at the Lyme Disease Foundation. My own personal tragedy, and the loss of
my infant son, galvanized me into action, and my concern for other pregnant
women continues to spur me on. Because 20% of women in the United States and
Europe are of childbearing age, the risks of Lyme disease demand our attention
"Although data on this subject remain scarce, research demonstrates that a
pregnant woman who becomes infected with Bb and does not receive prompt
antibiotic treatment can transmit the bacteria through the bloodstream to her
fetus, with potentialy dire consequences. Rest assured, however: Pregnant
women who do receive appropriate treatment generally do very nicely.
"In 1985, The Annnals of Internal Medicine became the first medical journal
to publish an article describing a case of maternal/fetal transmission that
resulted in the death of an infant. In another study, discussed by T. Gardner
in a chapter of Infectious diseases of the Fetus and Newborn, 161 cases of Lyme
disease during pregnancy were reviewed, and some sort of adverse outcomes were
found in 46 of them. The risk to fetal development was highest if a woman
became infected during her first trimester of pregnancy. The author concludes
outcomes (which may be relatively mild or very severe) occur 63% of the time in
the first trimester, 38% of the time in the second trimester, and just 10% of
the time if infection occurs in the final trimester.
"Documented adverse outcomes include a risk of retarded growth, respiratory
distress, eye problems, brain infection, heart abnormalities, and damage to
other organs. On rare occassions, fetal malformations, miscarriage, and ealy
infant death have been linked to Lyme disease, and the spirochete has been
recovered from both fetal remains and placental tissue. In addition, the
possibility that Lyme disease in pregnancy is linked to susequent developmental
delays and learning disabilites has been documented.
"Also of concern are the results of recent studies suggesting that it may
be possible to transmit infection in breast milk. A study published by B.
Schmidt in 1995 detected Bb in two samples of milk provided by lactating women
with Lyme disease. A year later, a study conducted mice also proved that early
breast milk from an infected mother could transmit the infection to the
newborn. This experiment raises questions about earlier assumptions that an
infants>s stomach acid would most likely kill any Lyme bacteria.
"While every pregnant and nursing woman needs to take special precautions
to prevent tick bite, there is no surefire way to stay safe. Securing an
accurate diagnosis can be challenging, especially given the many discomforts
that are a part of almost any pregnancy. If you are pregnant and are bitten
by a tick, prompt antibiotic treatment is crucial, even if you don>t know for
sure that you have been infected."
"Lyme disease: Its neurologic manifestations and its presentation in
Wisconsin"
Michael Finkle, MD, Eau Claire, Wisconsin
Wisconsin Medical Journal, July 1986: Vol. 85
".....Lyme disease is a name used in the United States to describe the human
illness
caused by a tick-borne spirochete It is a multisystemic illness with multiple
postulated mechanisms of pathogenesis. It occurs GLOBALLY, has a plethora of
presentations, and has many different vectors...."
"......Cases also have been reported from the tick-free
areas of Sweden, and it is postulateed that the vector for these cases may have
been mosquitos. Doctor Elizabeth Burgess at the University of Wisconsin
Veterinary School has demonstrated that tick-free seronegative dogs will turn
seropositive if housed with tick free infected dogs. Doctor Burgess also
cultured spirochetes from the blood of tick-free seronegative field mice who
were exposed to infected field mice. This demonstrates that the spirochete can
be passed among the natural reservoir without the intervention of the
tick......." |
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Rita Stanley
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| Posted: Sun Sep 14, 2003 6:08 am Post subject: Re: Lauren>s Story - Oregon |
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The Valley News
PO Box 839
Elgin, OR 97827
Tel: 541-437-8014
Fax: 541-437-9011
Email: tvn@eoni.com
Editor: Rich Zinzer |
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Gadavies10
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| Posted: Fri Sep 19, 2003 9:19 am Post subject: RE: (TBD-VN) Action Alert- Urgent- Petition |
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September 12, 2003
The following is a Tick-Borne Disease Volunteer Network (TBD-VN) E-Petition
alert. TBD-VN is a volunteer Lyme Disease activist group.
The purpose of this E-Petition is to combine our voices to inform, educate and
hopefully influence the agencies and people involved in removing Alisa
Masterson>s four young children from her care.
This E-Petition is also designed to alert the media in hopes they will
investigate and help inform the public of the roadblocks and penalties many
Tick-borne disease infected people suffer while actively pursuing a diagnosis.
The Masterson E-Petition will not be sent to any other person, agency,
organization or publication than those listed on the petition. Further, this
petition will not be used again for any other purpose.
If you wish to support this petition, e-mail the address provided.
Write the words,
"add my name to the Masterson petition," along with one of the
following two
choices:
1. Your name, address, State/Province, and Country.
- OR -
2. Your name, e-mail address, State/Province, and
Country.
E-mail your response to following address:
Materson_Petition@wildernetwork.org
For more information, or questions contact:
Masterson_Petition_Info@wildernetwork.org
Thank you for your time,
The Tick-Borne Disease Volunteer Network
Tick-Borne DiseaseVolunteer Network E-Petition:
September 12, 2003
To:
Social Services Department
Children and Families Service
429 - 433 Pinner Road,
North Harrow
HA1 4HN
United Kingdom
To Whom this may concern,
It has come to our attention that Alisa Masterson>s four children were removed
from her care by the London Borough of Harrow>s Department of Social Services
on August 14th, 2003. Ms. Masterson is allegedly being charged with
Munchausen>s by proxy for because she believes her children could have acquired
Lyme Disease and/or other Tick-borne diseases and was pursuing a diagnosis.
We the undersigned believe the Borough of Harrow>s Department of Social
Services should consider the following in their case against Ms. Masterson:
1. Detection tests for Lyme Disease and other Tick-borne diseases are
unreliable. Researchers around the world are presently working on developing
more sensitive tests to resolve this problem.
2. Diagnosis of untreated Lyme Disease and associated tick-borne illnesses can
only be rendered by a physician who is experienced in clinically diagnosing
late-stage and complex cases.
3. There are over 350 strains of the Lyme Disease spirochete and dozens of
other possible Tick-borne diseases. A patient can carry a multitude of Tick-
borne infection combinations. Thus, individual patients can present a multitude
of different symptoms.
4. The symptoms a Tick-borne disease infected patient experiences can be
intermittent, chronic, wax, wane or go into remission.
5. The earlier the infection is caught and treated the easier it is to
eradicate. If the patient is not correctly diagnosed and treated in a timely
manner the infection(s) can:
A. Permanently damage virtually every organ in the victim>s body including, the
central nervous system, the brain, heart, lungs kidneys, eyes, etc.
B. The infection(s) become harder to eradicate and the disease can turn into a
persistent or chronic form.
6. It is not uncommon for tick-borne disease infected persons to be
misdiagnosed for the
following reasons;
A. Inexperienced doctors relying upon unreliable detection tests and outdated
diagnostic recommendations intended solely for surveillance purposes.
B. Inexperienced doctors unable to recognize the many presentations and
manifestations of symptoms of Lyme Disease, or the many different combinations
of symptoms the Tick- borne disease co-infected patient can present.
C. Inexperienced doctors who believe a Lyme Disease diagnosis requires the
patient to present a bulls-eye rash. Only about 50% of infected people develop
this rash.
D. Due to overlapping symptoms, Tick-Borne disease symptoms are commonly
mistaken for other illnesses such as Fibromyalgia, Chronic Fatigue Syndrome
(ME), MS, ALS, Alzheimer>s disease, Parkinson>s disease and many others. In
addition, psychological/psychiatric symptoms and behavioral problems are rarely
investigated as having an infectious spirochetal organism as the causative
agent.
E. Closed minded uninformed doctors believing their patient could not possibly
have a Tick-Borne disease because this problem does not exist in their
geographic area. Ticks know no geographic boundaries.
Based on the above scientifically derived facts, the Borough of Harrow>s
Department of Social Services cannot logically rule Ms. Masterson>s children do
not have a Tick-Borne disease or a combination of Tick-Borne diseases. The
Social Service Department in question has allegedly, either due to inexperience
or lack of knowledge regarding the infectious organisms that could be involved,
ruled the children do not have Lyme Disease, based on the results of unreliable
detection tests. Furthermore, to the best of our knowledge, the children in
question were never tested for other possible Tick-Borne infections that can
be acquired as sole infections or as co-infections of Lyme Disease.
Based on our experience, Tick-borne Disease issues are best addressed by family
members familiar with the patient(s) and in this respect, it would be in the
children>s best interest to be with their mother. The department of Social
Services cannot scientifically prove Ms. Masterson>s children do not have Lyme
Disease or other Tick-Borne diseases based solely on the results of
questionable detection tests and these factors seem to be the basis of
confiscating Ms. Masterson>s children.
Ms Masterson has the basic human right to pursue any medical attention she
deems suitable for her children. We recommend she takes her children to a
doctor with demonstrated expertise in diagnosing and treating Tick-Borne
Diseases who has working relationships with laboratories that meet reference
standards in Tick-Borne detection tests.
Links to data supporting this position are provided below.
We very much appreciate your help and attention in this matter.
Very sincerely,
The Tick-Borne Disease Volunteer Network
CC:
Ms. Manraj Pallan
Shah Solicitors,
168 Greenford Road,
Sudbury Hill, Middx.
HA1 3QZ
United Kingdom
U. S. Senator Rick Santorum (R-PA), U. S. Senator Christopher Dodd (D-CT),
Los Angeles Times, LA Daily News, The Detroit News, The Detroit Free Press,
BBC, San Francisco Chronicle, Associated Press, The Washington Post, NY Times,
NY Post, The London News Review,
Guardian Newspapers, Harrow Times, Newsquest Digital, The Watford Observer,
Review & Observer Newspapers, Bucks Free Press Group, Times & Chicago Tribune,
Chicago Sun-Times, The Philadelphia Inquirer, Philadelphia Daily News,
Children>s Rights Alliance for England,
International Action Center, Invisible Disabilities Advocate, Citizens Against
Human Rights Abuse, USA Today, Time Magazine, Newsweek, U.S. News & World
Report, Christian Science Monitor, Baltimore Sun, Boston Globe, Boston Herald,
Dallas Morning News, Houston Chronicle, Miami Herald, Wall Street Journal,
Washington Times , USA Today, KTVU, Dolly Curtis Interviews, FOX News, MSNBC,
CNN, Larry King Live on CNN, Lou Dobbs tonite on CNN, Jeff Rense, C-SPAN, ABC
News, Nightline, CBS News, NBC News , BET, PBS, Berns Bureau, NPR, Pacifica
Network News, Spanish Broadcast, National Review,
World Media Foundation, National Enquirer, Star Magazine, ILADS, TownOnline,
Lymesite
References
1. Optic neuropathy in children with Lyme disease. Pediatrics. 2001
Aug;108(2):477-81. Rothermel H, Hedges TR 3rd, Steere AC. Division of
Rheumatology/Immunology, Tufts University School of Medicine, New England
Medical Center, Boston, MA 02111, USA.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgicmd=Retrieve&db=PubMed&dopt=A
bstract&list_uids=21376742
2. Gastrointestinal pathology in children with Lyme disease, Fried MD, Duray
PH, Pietrucha D; JSTD 1996; 3:101-104
http://www.jstd.org/abstracts/v3n2_96.html
3. Overview of Neuropsychiatric Lyme . Brian A. Fallon, MD, MPH Associate
Professor of Clinical Psychiatry at the Columbia University College
ofPhysicians and Surgeons
http://cpmcnet.columbia.edu/dept/nyspi/flatp/lymeoverview.html
4. Division of Vector-Borne Infectious Diseases, Lyme Disease, Diagnosis
http://www.cdc.gov/ncidod/dvbid/lyme/diagnosis.htm
5. Division of Microbiology & Infectious Diseases, Diagnosis of Lyme Disease
http://www.niaid.nih.gov/dmid/lyme/diagnosis.htm
6. Neurological manifestations of Lyme Disease In Children
Dorothy M. Pietrucha, M.D., P.A.
Pediatric Neurology
3318 Route 33
Neptune, New Jersey 07753
Telephone: (908) 922-0337
FAX: (908) 922-1631
http://library.lymenet.org/domino/file.nsf/0/c8237a2ae855bac6852567c700120
021?OpenDocument
7. All In Your Head? by Robert C. Bransfield, M.D.
http://www.lymealliance.org/research/bransfield/bransfield_1.php
8. The Mother of All Accusations by Amy Silverman Phoenix New Times: February
2-8, 1995 Volume 26, Number 5 http://www.msbp.com/jan.htm
9. 2000 Daily Express Doctors' Child Abuse Theory That Is Tearing Families
Apart
By Lucy Johnston and Jonathan Calvert
http://www.msbp.com/tearing_families_apart.htm
10. FALSE AND HIGHLY QUESTIONABLE ALLEGATIONS OF MUNCHAUSEN SYNDROME BY PROXY
presented by Dr Helen Hayward-Brown.This paper was written in 1999 and
presented to the 7th Australasian Child Abuse and Neglect Conference in Perth.
http://signup.pnc.com.au/~heleneli/paper.htm
11. "A Controlled Study of Cognitive Deficits in Children with Chronic Lyme
Disease" Tager, Fallon, Rissenberg, Jones, Keilp, Liebowitz
http://www.lymediseaseassociation.org/chronic_lyme_disease_in_children.htm
12. "The Children of Lyme Disease" Charles Ray Jones, MD
Pediatrician, Private Practice, New Haven, CT
http://www.wildernetwork.org/LDpediatricfund.html
Further information is available at the following supporting links :
www.lymealliance.com
Www.lymeinfo.org
www.actionlyme.com
www.ilads.org
www.lymediseaseassociation.org
www.lyme.org
www.lymenet.org
http://www.ahmf.org/protect.html
http://www.msbp.com/
www.igenex.com
www.mdlab.com
Http://www.wildernetwork.org/LDpediatricfund.html
http://www.wildernetwork.org
http://www.wildernetwork.org/index.html |
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Kathleen
Guest
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| Posted: Sun Sep 21, 2003 10:10 pm Post subject: SUE LENNY SIGAL........Re: Ashley>s long, painful journey (O |
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Ashley>s Mom can sue Lenny Sigal for tha Munchausen>s
accusations
http://www.actionlyme.com/Sigal.htm
http://www.actionlyme.com/UN_PETITION.htm
sinaj101@aol.com (Sinaj101) wrote in message news:<20030829145138.03483.00000116@mb-m11.aol.com>...
[quote]RoseNote: This story is even more painful to read because it was
submitted by one of our own LymeInfo members. Part I outlines their
tragic and personal journey of years of misdiagnosis and suffering.
http://www.oregonlive.com/news/argus/index.ssf?/base/news/106210664818
350.xml
The Hillsboro Argus/The Oregonian
Portland, OR
Ashley>s long, painful journey What really bites are the words: 'We
don>t have Lyme in Oregon'
08/28/03
This is the first of a two-part story about a local girl>s harrowing
journey into pain and suffering caused by an unwanted antagonist --
Lyme Disease. -- who fooled doctors for nearly 10 years
In 1993, at six years of age, Ashley was a normal, happy, healthy
child. She is now 16.
The intervening years, which one could reasonably have expected to be
happy, instead have been a hellish nightmare of medical emergencies,
inaccurate and conflicting diagnoses, inappropriate medication,
battles with medical and insurance bureaucracies, and searching for a
doctor who could accurately diagnose and treat Ashley>s condition.
These years have been anything but normal and happy for Ashley and
her parents, Marty and Theresa.
A week after Ashley had a tick bite her mother took her to a doctor,
with concerns about a tick infection. Ashley had swollen glands,
extreme lethargy, severe headache, had stopped eating and was having
trouble moving her head.
Although he documented the tick bite, a negative response to the
doctor>s question as to whether the family had visited the east coast
in the past month led him to rule out Lyme Disease, insisting
that "we don>t have Lyme in Oregon." His diagnosis -- the flu.
Over the next month Ashley had recurring high fevers, from 103 to
106.8 degrees, severe headaches, increased lethargy, many sinus
infections and developed asthma. These symptoms resulted in numerous
hospital trips.
After the first year the fevers subsided, to be replaced by severe
pain in her neck, knees, shoulders, ankles, fingers and hips. In
order to care for her daughter her mother, Theresa, stopped work and
school. The doctor dismissed Theresa>s questions about Lyme Disease,
instead referring Ashley to an orthopedic specialist, who could find
no clinical cause for the pain.
The doctor decided that Ashley must be depressed or abused, and
suggested that she was making up her symptoms to gain attention or to
miss school.
Over the next few years Ashley>s symptoms became more severe and
varied. She suffered severe nosebleeds, headaches, vomiting and
fainting spells. This very bright child, who had loved school and
learning new things, and who had been ahead of most of her classmates
in math, began to have trouble understanding. Her teachers complained
that she was not paying attention.
At a horse show in August, 1997, while riding her bicycle slowly from
the barns to the family>s motor home, Ashley lost consciousness and
rolled over the handlebars. She landed face first, badly damaging her
jaw. The dizzy spells and blackouts continued.
The administrator at the small, private school where her parents had
enrolled her for fifth grade, called Ashley>s parents and said that
something was drastically wrong with her. While this was frightening,
it was also reassuring that someone else was seeing the same symptoms
her parents were seeing. They contacted a highly recommended
neurologist, who diagnosed "absent seizures,"as the cause of her
frequent blackouts.
For the remainder of her fifth grade year Ashley was home-schooled.
Her study times frequently ended in tears, with Ashley sobbing
that "I know I>ve done this before, but I don>t know how anymore."
By summer of 1998, although her pain continued, she began riding her
horse, even attending two small horse shows, but because of her
seizures her doctors advised against riding competitively. Now age
12, Ashley developed an interest in figure skating, and begged her
parents to let her take a few lessons. She loved it, but her knees
began to give out and she fell frequently. Her orthopedic specialist
told her to stop skating and sent her to physical therapy.
That helped, and she was able to resume skating.
In April, 1999, one of the champion Tennessee Walking Horse mares the
family owned gave birth to a beautiful little filly, who was named
Hallelujah>s Superstar (Hallie for short.) Ashley immediately fell in
love with Hallie, spent every day hand feeding her and teaching her
to lead, in anticipation of showing her at a horse show the end of
May.
On the Wednesday preceding the show, while brushing Hallie, Ashley
had such severe stomach pains that she crumpled to the floor. Another
girl helped her to the house, where she immediately laid down and
fell asleep.
Theresa hired the girl to be their groom for the show, so that
Ashley>s only responsibility would be to show her filly. In spite of
sleeping much of the time, and a very small appetite that meant she
ate very little, Ashley was able to show Hallie, who won a blue
ribbon!
While at the horse show, Ashley>s face was pale and swollen, she
began feeling very faint, and began to sway. When they stopped for
dinner on the way home she was able to swallow only a few spoonfuls
of her favorite clam chowder. After going to sleep in the motor home,
she began coughing and choking. Two doctors agreed that she was
suffering from congestive heart failure, caused by tachycardia (rapid
heart beat.) Her choking at night was due to her lungs filling with
fluid, and her inability to eat stemmed from her swollen heart
pressing on her sternum.
For nearly three months Ashley was unable to get out of bed without
fainting due to her rapid and fluttery heart beat. Her cardiologist
referred her to a pediatric pulmonologist, who noted that "Ashley>s
only problem is that she>s depressed." When Theresa challenged the
doctor, his response was "your daughter is stressed because you are
depressed and tightly wound." They left, and did not return.
In 2000, near the end of Ashley>s seventh grade year, at age 13, she
was ice skating again, and riding horses occasionally, although she
had very little stamina. She dreamed of riding in the National
Celebration, the world>s largest Tennessee Walking Horse Show, and
her mother entered her.
Ashley was still suffering from seizures, and consequently needed to
wear a helmet when riding, but her dream came true when she rode in
the National Celebration!
By 2001, after years of watching their daughter suffer, Ashley>s
parents were looking for some kind of change. They>d enjoyed camping
in central Oregon, and they jumped at a chance to move to Bend. The
list of Ashley>s diagnoses was by now very long: fibromyalgia,
chronic fatigue syndrome, severe headaches, juvenile rheumatoid
arthritis without the rheumatoid factor, seizure disorder, asthma,
flu syndrome, weak leg syndrome, mental disorder, and depression.
In addition, her mother was being explored for child abuse or
Munchausen>s Syndrome!
A break in their search for answers came when a friend, who had
camped with them in the area, moved to another state, where she was
diagnosed with Lyme Disease. When her friend asked about Ashley>s
health, and Theresa described what had been happening, her friend
stated emphatically her belief that Ashley had Lyme.
Part II next Thursday.
©2003 OregonLive.com. All Rights Reserved.
****
Letters to the Editor:
letters@news.oregonian.com (150 words)
****TOIL for Lyme****
T = Teach tolerance
0 = Overcome ignorance
I = Initiate insurance reform
L = Labor for Lyme literacy/advocacy
Reply to: Rose@LymeInfo.net
Visit our website at http://www.lymeinfo.net for Lyme Disease
information!
===
The mission of Lymeinfo is to keep you informed of issues that might be of
interest to Lyme disease patients. Postings are not meant to imply that we
agree with the content of all items we distribute.
For Lyme information, see:
http://www.lymeinfo.net
To subscribe to this group:
lymeinfo-subscribe@yahoogroups.com
or see:
http://groups.yahoo.com/group/lymeinfo/
Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/[/quote] |
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POP1990
Guest
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| Posted: Tue Sep 23, 2003 2:16 am Post subject: Re: SUE LENNY SIGAL........Re: Ashley>s long, painful journe |
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I hope she sues the hell out of him, God knows he has the cash from all the
insurance company payoffs. |
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Chuck P Adams
Guest
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| Posted: Tue Sep 23, 2003 3:00 am Post subject: Re: SUE LENNY SIGAL........Re: Ashley>s long, painful journe |
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[quote]From: pop1990@aol.com (POP1990)
Date: 9/22/2003 5:16 PM Eastern
I hope she sues the hell out of him, God knows he has the cash from all the
insurance company payoffs.
[/quote]
Just like the lawsuit against Ed ....LMAO
You lose again |
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POP1990
Guest
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| Posted: Tue Sep 23, 2003 4:57 am Post subject: Re: SUE LENNY SIGAL........Re: Ashley>s long, painful journe |
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| Another one with no life. |
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Kathleen
Guest
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| Posted: Tue Sep 23, 2003 6:07 pm Post subject: Re: SUE LENNY SIGAL........Re: Ashley>s long, painful journe |
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chuckpadams@aol.comnojunk (Chuck P Adams) wrote in message news:<20030922180035.24316.00000020@mb-m03.aol.com>...
[quote]From: pop1990@aol.com (POP1990)
Date: 9/22/2003 5:16 PM Eastern
I hope she sues the hell out of him, God knows he has the cash from all the
insurance company payoffs.
Just like the lawsuit against Ed ....LMAO
You lose again
[/quote]
Hi thanks Pop.
Ed>s ass will be grass, we all know that.
I have documents on him from his old days
when he harassed the Navy, and got his butt
chewed for himself even then.
NOW he will wreck the NIH, since he how has
THEM under investigation for putting up with
his NOT WORKING for 10 years, at $100,000 a year.
Good One. Hire Ed McSweegan and get yourself
a major Pain in the Ass, and then a major public
ENEMA.
http://www.actionlyme.com/McSweegan.htm |
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Gadavies10
Guest
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| Posted: Thu Sep 25, 2003 11:38 am Post subject: RE: TBD-VN Urgent Petition Alert- Deadline |
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Hello All,
Alisa Masterson>s next court date is October 2, 2003. Thus, we have to set a
very short (September 26th) deadline for receiving signatures for the
petition. We then need to get it faxed, E-mailed and snail mailed to the CC>s
listed on the petition before the court date.
Please make a note of this. We have already had a wonderful response to this
petition (including doctors)! Please join in.
We would like to jointly respond to a question about who the Tick-Borne
Volunteer Network is. We are a group of five people from different parts of the
US (with the help of some friends) who decided to try to make a difference
outside of the various LD organizations we belong to.
Thank you,
Barb Fitzmaurice, Gayla Davies, Minguel Lizano, Paula Capasso, and Laureen
Leigh.
September 12, 2003
The following is a Tick-Borne Disease Volunteer Network (TBD-VN) E-Petition
alert. TBD-VN is a volunteer Lyme disease activist group.
The purpose of this E-Petition is to combine our voices to inform, educate and
hopefully influence the agencies and people involved in removing Alisa
Masterson>s four young children from her care.
This E-Petition is also designed to alert the media in hopes they will
investigate and help inform the public of the roadblocks and penalties many
tick-borne disease infected people suffer while actively pursuing a diagnosis.
The Masterson E-Petition will not be sent to any other person, agency,
organization or publication than those listed on the petition. Further, this
petition will not be used again for any other purpose.
If you wish to support this petition, e-mail the address provided below. Write
the words, "add my name to the Masterson petition," along with one of the
following two choices:
1. Your name, address, State/Province, and Country.
OR,
2. Your name, e-mail address, State/Province, and Country.
E-mail your response to the following address:
Masterson_Petition@wildernetwork.org
For more information, or questions contact:
Masterson_Petition_Info@wildernetwork.org
Thank you for your time,
The Tick-Borne Disease Volunteer Network
Tick- Borne Volunteer Network E-Petition:
September 12, 2003
To:
Social Services Department
Children and Families Service
429 - 433 Pinner Road,
North Harrow
HA1 4HN
United Kingdom
To Whom this may concern,
It has come to our attention that Alisa Masterson>s four children were removed
from her care by the London Borough of Harrow>s Department of Social Services
on August 14, 2003. Ms. Masterson is allegedly being charged with Munchausen>s
by proxy because she believes her children could have acquired Lyme disease
and/or another tick-borne disease or diseases and was in the process of
pursuing a thorough and proper diagnosis.
We the undersigned believe the Borough of Harrow>s Department of Social
Services should consider the following in their case against Ms. Masterson:
1. Detection tests for Lyme disease and other tick-borne diseases are
unreliable. Researchers around the world are presently working on developing
more sensitive tests to resolve this problem.
2. Diagnosis of untreated Lyme disease and associated tick-borne illnesses can
only be rendered by a physician who is experienced in clinically diagnosing
late-stage and complex cases. Tests are only a part of the entire evaluation
process.
3. There are over 350 strains of the Lyme disease spirochete and in addition,
many other tick-borne diseases. A patient can carry a multitude of tick-borne
infection combinations. As a result, individual patients can present with a
multitude of different symptoms.
4. The symptoms a patient infected with tick-borne disease(s) experiences can
be intermittent, chronic, wax, wane or go into remission.
5. The earlier the infection is caught and treated the easier it is to
eradicate. If the patient is not correctly diagnosed and treated in a timely
manner the infection(s) can:
A. permanently damage virtually every organ in the victim>s body including, the
central nervous system, the brain, heart, lungs kidneys, eyes, etc.
B. the infection(s) become harder to eradicate and may result in persisting
infection and/or a chronic form.
6. It is not uncommon for patients infected with tick-borne disease to be
misdiagnosed for the following reasons;
A. inexperienced doctors who use unreliable detection tests and outdated
diagnostic recommendations that are intended for surveillance purposes only.
B. inexperienced doctors who are unable to recognize the many presentations and
symptom manifestations of Lyme disease, let alone those seen in co-infected
patients.
C. inexperienced doctors who believe a Lyme disease diagnosis requires that the
patient to present with a bulls-eye rash. Only about 50% of infected people
develop this rash.
D. refusal to consider tick-borne etiology when diagnosed with illnesses such
as Fibromyalgia, Chronic Fatigue Syndrome (ME), MS, ALS, Alzheimer>s disease,
Parkinson>s disease and others, including psychological/psychiatric symptoms
and behavioral problems.
E. closed minded, uninformed doctors who insist their patients could not
possibly have a tick-borne disease because they incorrectly believe this
problem does not exist in a particular geographic area.
Based on the above scientifically derived facts, the Borough of Harrow>s
Department of Social Services cannot logically or conclusively rule that Ms.
Masterson>s children do not have one or more tick-borne diseases. The Social
Service Department in question has allegedly, either due to inexperience or
lack of knowledge regarding the infectious organisms that could be involved,
ruled that the children do not have Lyme disease and this was based solely on
the results of unreliable detection tests. Furthermore, to the best of our
knowledge, the children in question were never tested for other possible
Tick-borne infections that can be acquired as sole infections or as
co-infections of Lyme disease.
In our opinion, Lyme disease issues are best addressed by family members
familiar with the patient(s) and in this respect, it would be in the
children>s' best interest to be with their mother. The department of Social
Services cannot scientifically prove Ms. Masterson>s children do not have Lyme
disease or other tick-borne diseases based solely on the results of
questionable detection tests. These factors seem to be the basis of
confiscating Ms. Masterson>s children.
Ms Masterson has the basic human right to pursue any medical attention she
deems suitable for her children. We recommend she takes her children to a
doctor with demonstrated expertise in diagnosing and treating tick-borne
diseases who has working relationships with laboratories that meet reference
standards in Tick-borne detection tests.
Links to data supporting this position are provided below.
We very much appreciate your help and attention in this matter.
Very sincerely,
The Tick-Borne Disease Volunteer Network
CC:
Ms. Manraj Pallan
Shah Solicitors,
168 Greenford Road,
Sudbury Hill, Middx.
HA1 3QZ
United Kingdom
U. S. Senator Rick Santorum (R-PA), U. S. Senator Christopher Dodd (D-CT), Los
Angeles Times, LA Daily News, The Detroit News, The Detroit Free Press, BBC,
San Francisco Chronicle, Associated Press, The Washington Post, NY Times, NY
Post, The London News Review, Guardian Newspapers, Harrow Times, Newsquest
Digital, The Watford Observer, Review & Observer Newspapers, Bucks Free Press
Group, Times & Chicago Tribune, Chicago Sun-Times, The Philadelphia Inquirer,
Philadelphia Daily News, Children>s Rights Alliance for England, International
Action Center, Invisible Disabilities Advocate, Citizens Against Human Rights
Abuse, USA Today, Time Magazine, Newsweek, U.S. News & World Report, Christian
Science Monitor, Baltimore Sun, Boston Globe, Boston Herald, Dallas Morning
News, Houston Chronicle, Miami Herald, Wall Street Journal, Washington Times ,
USA Today, KTVU, Dolly Curtis Interviews, FOX News, MSNBC, CNN, Larry King Live
on CNN, Lou Dobbs tonite on CNN, Jeff Rense, C-SPAN, ABC News, Nightline, CBS
News, NBC News , BET, PBS, Berns Bureau, NPR, Pacifica Network News, Spanish
Broadcast, National Review, World Media Foundation, National Enquirer, Star
Magazine, ILADS, TownOnline, Lymesite
References:
1. Optic neuropathy in children with Lyme disease. Pediatrics. 2001
Aug;108(2):477-81. Rothermel H, Hedges TR 3rd, Steere AC. Division of
Rheumatology/Immunology, Tufts University School of Medicine, New England
Medical Center, Boston, MA 02111, USA.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_
uids=11483820&dopt=Abstract
2. Gastrointestinal pathology in children with Lyme disease, Fried MD, Duray
PH, Pietrucha D; JSTD 1996; 3:101-104
http://www.jstd.org/abstracts/v3n2_96.html
3. Overview of Neuropsychiatric Lyme . Brian A. Fallon, MD, MPH Associate
Professor of Clinical Psychiatry at the Columbia University College
ofPhysicians and Surgeons
http://cpmcnet.columbia.edu/dept/nyspi/flatp/lymeoverview.html
4. Division of Vector-Borne Infectious Diseases, Lyme Disease, Diagnosis
http://www.cdc.gov/ncidod/dvbid/lyme/diagnosis.htm
5. Division of Microbiology & Infectious Diseases, Diagnosis of Lyme Disease
http://www.niaid.nih.gov/dmid/lyme/diagnosis.htm
6. Neurological manifestations of Lyme Disease In Children
Dorothy M. Pietrucha, M.D., P.A.
Pediatric Neurology
3318 Route 33
Neptune, New Jersey 07753
Telephone: (908) 922-0337
FAX: (908) 922-1631
http://library.lymenet.org/domino/file.nsf/0/c8237a2ae855bac6852567c700120
021?OpenDocument
7. All In Your Head? by Robert C. Bransfield, M.D.
http://www.lymealliance.org/research/bransfield/bransfield_1.php
8. The Mother of All Accusations by Amy Silverman Phoenix New Times: February
2-8, 1995 Volume 26, Number 5 http://www.msbp.com/jan.htm
9. 2000 Daily Express Doctors' Child Abuse Theory That Is Tearing Families
Apart By Lucy Johnston and Jonathan Calvert
http://www.msbp.com/tearing_families_apart.htm
10. FALSE AND HIGHLY QUESTIONABLE ALLEGATIONS OF MUNCHAUSEN SYNDROME BY PROXY
presented by Dr Helen Hayward-Brown.This paper was written in 1999 and
presented to the 7th Australasian Child Abuse and Neglect Conference in Perth.
http://signup.pnc.com.au/~heleneli/paper.htm
11. "A Controlled Study of Cognitive Deficits in Children with Chronic Lyme
Disease" Tager, Fallon, Rissenberg, Jones, Keilp, Liebowitz
http://www.lymediseaseassociation.org/chronic_lyme_disease_in_children.htm
12. "The Children of Lyme Disease" Charles Ray Jones, MD
Pediatrician, Private Practice, New Haven, CT
http://www.wildernetwork.org/LDpediatricfund.html
Further information is available at the following supporting links :
www.lymealliance.org
www.lymeinfo.net
www.actionlyme.com
www.ilads.org
www.lymediseaseassociation.org
www.lyme.org
www.lymenet.org
www.ahmf.org/protect.html
www.msbp.com
www.igenex.com
www.mdlab.com
www.wildernetwork.org/LDpediatricfund.html
www.wildernetwork.org/index.html |
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RMAgricola
Guest
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| Posted: Mon Sep 29, 2003 5:11 am Post subject: Re: Nude Neighbour Tanning |
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How does one report this poster?
Martha A. |
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Chuck P Adams
Guest
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| Posted: Mon Sep 29, 2003 5:49 am Post subject: Re: Nude Neighbour Tanning |
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[quote]From: rmagricola@aol.com (RMAgricola)
Date: 9/28/2003 8:11 PM Eastern
How does one report this poster?
Martha A.
[/quote]
Moron |
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RMAgricola
Guest
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| Posted: Mon Sep 29, 2003 7:29 pm Post subject: Re: Nude Neighbour Tanning |
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Chuck, I always knew you were a moron.
Martha A. |
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RMAgricola
Guest
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| Posted: Thu Oct 02, 2003 6:02 am Post subject: Re: Testeo de News |
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Don>t you know Lymies loose their interest in things sexual? Go
away!!!!!!!!!!!!!!! |
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